Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials

by Frances C. Sherratt, Louise Roper, Simon R. Stones, Flora McErlane, Matthew Peak, Michael W. Beresford, Helen Foster, Athimalaipet V. Ramanan, Madeleine Rooney, Eileen Baildam, Bridget Young

Studies involving CYP are advocated in the literature but we are not aware of any early stage feasibility studies that have qualitatively accessed the perspectives of parents and CYP with a long term condition to inform design and conduct of a trial. In the context of a feasibility study to inform the design of a proposed randomised controlled trial of corticosteroid induction regimen in JIA, we explored families’ perspectives on the proposed trial and on JIA trials generally.

17th December 2018 • comment

The aim of this study is to explore what participation means for children (including those with and without disability) in rural Northern Malawi.

13th February 2018 • comment

This paper looks at the infants in Malawi who suffered from low birth weight, and asks the question: how can we improve the outcomes? 

13th February 2018 • comment

This article looks at Traditional Birth Attendants in Somaliland and Sierra Leone and at the important role they play in their commiunities. 

13th February 2018 • comment

Sarah Drew shares her research diary about conducting ethnographic fieldwork in Malawi as part of a Clubfoot study.

16th March 2017 • comment