!Based on a systematic review of 98 scholarly papers and an empirical survey among 603 secondary data users, we develop a conceptual framework [of data sharing] that explains the process of data sharing from the primary researcher’s point of view. We show that this process can be divided into six descriptive categories."
Experiences of using life histories with health workers in post-conflict and crisis settings: methodological reflectionsby Sophie Witter, Justine Namakula, Alvaro Alonso-Garbayo, Haja Wurie, Sally Theobald, Wilson Mashange, Bandeth Ros, Stephen Buzuzi, Richard Mangwi, Tim Martineau
In this paper, we examine our experience of using life histories to explore health system trajectories coming out of conflict through the eyes of health workers
The meaning of participation for children in Malawi: insights from children and caregivers” Child: Care, Health and Developmentby F. Nelson, C. Masulani‐Mwale, E. Richards, S. Theobald, M. Gladstone
The aim of this study is to explore what participation means for children (including those with and without disability) in rural Northern Malawi.
Challenges to the care of low birthweight babies in rural Southern Malawi: a qualitative study exploring perceptions and experiences of caregivers and health workersby Marianne Koenraads, John Phuka, Kenneth Maleta, Sally Theobald, Melissa Gladstone
This paper looks at the infants in Malawi who suffered from low birth weight, and asks the question: how can we improve the outcomes?
Strengthening close to community provision of maternal health services in fragile settings: an exploration of the changing roles of TBAs in Sierra Leone and Somaliland BMC Health Services Researchby Evelyn Orya, Sunday Adaji, Thidar Pyone, Haja Wurie, Nynke van den Broek, Sally Theobald
This article looks at Traditional Birth Attendants in Somaliland and Sierra Leone and at the important role they play in their commiunities.
Gendered negotiations for research participation in community based studies in Kenya: Implications for health systems researchby Kamuya DM, Molyneux CS, Theobald S
In this paper, qualitative research was used alongside large clinical community-based studies conducted on the Kenyan Coast to explore how gender and power relations within households and communities and between fieldworkers and communities shape consent processes and interactions.
Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenyaby Irene Jao, Francis Kombe, Salim Mwalukore, Susan Bull, Michael Parker, Dorcas Kamuya, Sassy Molyneux, Vicki Marsh
Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement
Informing Culturally Appropriate Data-Sharing Practice in Vietnam.
A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand.