!Based on a systematic review of 98 scholarly papers and an empirical survey among 603 secondary data users, we develop a conceptual framework [of data sharing] that explains the process of data sharing from the primary researcher’s point of view. We show that this process can be divided into six descriptive categories."
Experiences of using life histories with health workers in post-conflict and crisis settings: methodological reflections
by Sophie Witter, Justine Namakula, Alvaro Alonso-Garbayo, Haja Wurie, Sally Theobald, Wilson Mashange, Bandeth Ros, Stephen Buzuzi, Richard Mangwi, Tim MartineauIn this paper, we examine our experience of using life histories to explore health system trajectories coming out of conflict through the eyes of health workers
The meaning of participation for children in Malawi: insights from children and caregivers” Child: Care, Health and Development
by F. Nelson, C. Masulani‐Mwale, E. Richards, S. Theobald, M. GladstoneThe aim of this study is to explore what participation means for children (including those with and without disability) in rural Northern Malawi.
Challenges to the care of low birthweight babies in rural Southern Malawi: a qualitative study exploring perceptions and experiences of caregivers and health workers
by Marianne Koenraads, John Phuka, Kenneth Maleta, Sally Theobald, Melissa GladstoneThis paper looks at the infants in Malawi who suffered from low birth weight, and asks the question: how can we improve the outcomes?
Strengthening close to community provision of maternal health services in fragile settings: an exploration of the changing roles of TBAs in Sierra Leone and Somaliland BMC Health Services Research
by Evelyn Orya, Sunday Adaji, Thidar Pyone, Haja Wurie, Nynke van den Broek, Sally TheobaldThis article looks at Traditional Birth Attendants in Somaliland and Sierra Leone and at the important role they play in their commiunities.
Gendered negotiations for research participation in community based studies in Kenya: Implications for health systems research
by Kamuya DM, Molyneux CS, Theobald SIn this paper, qualitative research was used alongside large clinical community-based studies conducted on the Kenyan Coast to explore how gender and power relations within households and communities and between fieldworkers and communities shape consent processes and interactions.
Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya
by Irene Jao, Francis Kombe, Salim Mwalukore, Susan Bull, Michael Parker, Dorcas Kamuya, Sassy Molyneux, Vicki MarshViews on Fair Process for Informed Consent, Access Oversight, and Community Engagement
Trust, Respect, and Reciprocity: Informing Culturally Appropriate Data-Sharing Practice in Vietnam
by Laura Merson, Tran Viet Phong, Le Nguyen Thanh Nhan, Nguyen Thanh Dung, Ta Thi Dieu Ngan, Nguyen Van Kinh, Michael Parker, Susan BullInforming Culturally Appropriate Data-Sharing Practice in Vietnam.
Perceived Benefits, Harms, and Views About How to Share Data Responsibly
by Phaik Yeong Cheah, Decha Tangseefa, Aimatcha Somsaman, Tri Chunsuttiwat, François Nosten, Nicholas P. J. Day, Susan Bull, Michael ParkerA Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand.